Our Life
Year in Review – 2010
The year 2010 flew by and I wanted to take a minute to document all the amazing things that has happened for our family. Brielle is now 3 years old and has a pretty full weekly schedule that keeps us moving all the time! She attends preschool three days a week, physical therapy once a week … [Read More...]
Stop SMA Clinical Trial – Univ of Utah
This week, Brooke and I made our 7th trip out to Utah for her clinic visit! This marks the end of her clinical trial and they tell us that this is her last visit (please read the bottom of this post). This makes me feel sad because I feel like we have gotten to know the staff and nurses at the … [Read More...]
Happy Halloween!
Happy Halloween Everybody! What are you dressing up as this year? Brielle is going to be Cinderella! We've turned her wheelchair into a giant ballgown! Brooke... well, we can't decide what Brooke wants to be. She wants to be a piggy... Or we were thinking to make her Gus … [Read More...]
Events
SMA BLOG PARTY: This is SMA
Brielle and Brooke, both have Spinal Muscular Atrophy, type II. SMA is a devastating disease and something I was not familiar with before Brielle's diagnosis. Since that diagnosis, our lives have changed so much. So many hopes and dreams for our kids went out the window. We still have so much … [Read More...]
A girl’s day at the track!
Brielle and Brooke got the chance of a lifetime today to meet Danica Patrick! Danica is an American auto racing driver, currently competing in the IndyCar Series, the ARCA Racing Series presented by RE/MAX and Menards, and the NASCAR Nationwide Series, as well as a model and advertising spokeswoman. She … [Read More...]
Our Story
Brooke was born December 5, 2008 and our family was overjoyed with adding another little girl into our family but sad that Eric would be leaving at the end of the month to be deployed to Afghanistan. Five days before Eric was deployed to Afghanistan we received devastating news that Brielle was diagnosed with Spinal Muscular Atrophy December 29, 2008. Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. … [Read More...]
